The ECL is participating in 2 workshops and presenting one paper at CSCW 2015 in Vancouver this week! Jessica Pater is participating in the workshop on Ethics in CSCW. Dr. James Clawson, Maia Jacobs, and Andrew Miller (ECL alumni now at Univ. of Washington) are participating in the workshop on Moving Beyond e-Health and the Quantified Self
Maia Jacobs will be presenting the paper, "Comparing Health Information Sharing Preferences of Cancer Patients, Doctors, and Navigators". Dr. James Clawson and Dr. Beth Mynatt are also authors on the paper.
Abstract: As technologies such as personal health records and symptom trackers become more common, we are beginning to see an increase in patients actively engaging in health tracking behaviors. Patient collected data can provide valuable insight for healthcare providers, particularly in the area of breast cancer. Thus far, little work has examined whether the health information that patients are willing to track and share aligns with the health information needs of healthcare providers. Our work provides a comparison between the health information sharing preferences between breast cancer patients, doctors and navigators. We identify discrepancies between stakeholders' preferences, signifying where technology can play an important role in helping patients prioritize the health information that is shared with providers. We also present design implications from this work to guide the development of future health information sharing tools that consider the differing needs of those within a healthcare network.